Tag Archive | Downs Syndrome

Retard!… That’s So Retarded. *Let’s Change.*

“That’s so RETARDED!”

“I feel retarded for saying/doing that.”

“What a retard!”

Have you ever heard someone, or heard yourself say any of the above statements?

How about, “I’m sorry, but your child is retarded.”

When you say things like “I’m/that is so retarded” or “what a retarded thing to say/do”, you are not just cutting down those that have said or done something out of the so-called “norm”. You are hurting those with in the Disability Community. Especially those that have cognitive/mental delays and/or brain injuries. You are implying that they are stupid. Even without aiming the R-word directly at them.

Yes, there is a medical definition of “mental retardation” and “mentally retarded”. But now, as a move and as a means to help end the use of the R-word, medical professionals have become known to now use the terms “mentally delayed”, “mentally handicapped”, “mentally disabled” or “cognitively delayed/handicapped/disabled”. Where in those latter terms do you see “retarded”? Nowhere. And that is a GREAT thing!

Take my pal, Holly over at Holly’s House; Not A Perfect Mom’s Blog and her little girl, Brooke, who has Downs Syndrome. Brooke is what you would call “Retarded”, but that word is NEVER used. She is cognitively delayed, but perfectly cute (and sly) in every way imaginable. And like Holly, I deplore the R-word. And I think it shows one’s ignorance when a person uses the term in a way of means to cut themselves or someone else down. Intentionally or not!

When I was little, I required a trache to assist me with my breathing due to other health issues with my lungs and airway. I had that thing in my throat a good chunk.. no my entire childhood. Had it removed 17 days before my 13th birthday. For years I was ridiculed, called names, mocked and made the butt of my peers’ jokes. And…

I was labeled “Retarded” by children and adults alike. Especially the adults that knew NOTHING of me, except my appearance out in public.

For years, I had to fight that R-word label. Seeing as I was NOT cognitively/mentally disabled. And even if I was, would that really and honestly be a “good” name to label me with? I didn’t think so either.

Please spare me the “Politically Correct” crap. I really don’t need to, or want to hear about us parents of Special Needs kids (or being a currently or formerly disabled person ourselves, possibly) getting all so-called ‘uppity’ over a “word”.

Maybe if you had to wear the label for a day, or even a week, and see how it feels, then rest assured, you would change your mind in a hot second, my friend!

So, join me and take the pledge to “Spread the word to end the Word”.

Go to R-Word; Spread the word to end the Word and tell everyone that you want to help us collectively say “this is wrong and it needs to stop!” today. I did.

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Special Needs Parent of the Month (February, 2012)

Welcome to the “Special Needs Parent of the Month” post, where MONTHLY, I will feature a Special Needs Parent. If you are interested in being considered as a featured SN parent in a future posting, please email me at melmom2angels@yahoo.com.

This month’s parent is Holly. She is a sweet, very energetic, hilarious and a bit of a potty-mouth (LOL!) lady. She wears her heart on her sleeve. And she has a pretty full plate. In her own words, she will tell of herself, her family, and her life with having a disabled child.

This is Brooke.

She’s my fourth child, my second daughter, and the only one born with an extra chromosome….

Brooke has Down Syndrome.

But please, don’t feel badly for me-or for her. Don’t make that cutesy smile and give me a look of pity mixed with wonder at how I do, especially with four other children…

Because Brooke? Is absolutely fantastic and a joy to have in our family…

I’m not going to pretend she’s exactly like our other children, because she’s not…

There is a developmental delay with Brooke. We just had an evaluation last week and she’s about 6-9 months behind her typical peers…not horrible, but still something that needs to be addressed so that Brooke can the best life possible…

So we do therapy. Brooke has physical therapy once a week for an hour, and occupational therapy and speech therapy twice a week for 30 minutes each. Is it a pain in the butt? Sometimes. Is it inconvenient? Sure, there are days I’d like to not plan around it…but we love Brooke, and we want her to thrive…so we go…

And Brooke loves it! She gets a kick out of people applauding for her, in fact, she expects it now no matter what task she does, so getting constant attention and love for doing puzzles or pointing out pictures in a book is right up that chunky girl’s alley!

But life isn’t all about therapy and trying to make her better…I’m a firm believer in letting her be a regular child.

Brooke plays with her brothers and sister. She pushes her babies around the stroller. She throws the ball. She colors on the walls. She claps and dances along to The Wiggles. She gives hugs and kisses. She throws her lunch at the wall when she’s not happy with what I’ve made.

Brooke is more like your child than different…

So what if she’s going to need a little bit more help learning? So what if she doesn’t have as many words as your kid does right now?

Brooke will catch up…

And we’re going to do anything we can to help her have an amazing life…

Because she’s worth it.

I’m a shameless self promoter by the way…read my blog at Holly’s House-Not a Perfect Mom’s Blog and check me out on my FACEBOOK LIKE PAGE too. And if you really love me, follow me on twitter. And uh, I hate to admit it, but I have a Google + page too #hangsheadinshame. Warning: I have a potty mouth….