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What A Difference A Fish Makes!

Meet Lumineon, formerly known as “Petrie”.

 

 

 

 

 

 

 

 

Who knew that a fish, of all things would be just what Dr. Mom ordered?

B’s birthday was on the 12th, and his grandparents gave him $10 to spend HIS way. So, he thought about it, and knowing that the girls were saving for a hamster, he wanted a pet too. And I thought that between the three, they were going to break me. Because, whatever the $10 did not cover, Dad and I would have to make up the difference.

To my surprise (and relief) B said he wanted a Tetra Beta fish. He’s been actually bugging hinting towards having a fish for a while now. But it really picked up steam once he had received money for his birthday. So, seeing as his older and younger sister had saved up enough of their money from chores, and he had his birthday money, a-shopping we did go!

My husband went downstairs to the fish department with B, as I stayed upstairs with his sisters. The guys (as usual) were done WAY before us ladies were. But everyone was happy when we left the pet store.

After Dad set up Lumineon in his bowl and placed him back in to B’s room, the next morning, I’d found something that my son had written. Something that kind of had taken me aback.

A *reminder* note! No one told him to do so. He had thought of this on his own.

Basically, it was stating to feed his fish in the morning and evening with 3 or 4 food pellets.

So far, so good, too. He has been doing well to remind me to feed him if he couldn’t, or to feed Lumineon himself. Let’s just say, we have a VERY happy Tetra Fish.

Oh, and as for the name? Petrie (pee-tree) was initially the name. For one thing, it made sense. The other was that it was easily stated. But, of course the boy just had to switch it on me. And being the Pokemon nut that he is, why was I even surprised at this? Because apparently, the fish is the same colors (blue and red) as some Pokemon that is named “Lumineon”.

 

 

 

 

 

 

 

 

 

 

And I honestly HATE typing the name out too, because my fingers get tongue-tied and I cannot for the life of me, get the name spelled straight on the first try. But I will have to admit, that the Pokemon version of Lumineon is cute.

In the end, having a fish called Lumineon is teaching my son, who usually is one to pass off responsibility to others, and not take ownership of pretty much anything, that HE is responsible for HIS pet, and it’s proper care. And it is teaching him about ownership, not just of a living creature, but that he must take ownership of his own actions and decisions, and of his own things. Plus, B seems to be more focused with tasking than before Lumineon came in to his life.

Thanks, Lumi (my short nick-name for the little guy) for helping my son see the true value of being a responsible, honest and reliable person in his community, and within his home. You have accomplished what most “experts”, and even us as his parents have failed in doing. He may have his “quirks”, but now, we have you. And you, my friendly fish, are showing him the way to being the kid I know he can be, and you are helping to let his full potential shine through.

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Need Support? We’ve Got It! (group link incl. in post)

I hope that everyone is well and is ready for the weekend. I know I am! This weekend shall be a bit busy. This evening, it’s haircuts for pretty much all five of us. Saturday is CLOTHES SWITCHING day to ready for the warm weather. Then Sunday, I’m hoping to get us and my Brother-in-law, his girlfriend and their kids together for a cookout at the park.

I’d like to take this post and tell you a bit about a place on FaceBook, that while not very active (at the moment), is a place of unconditional acceptance of our fellow members. From all walks of life, and of all different disabilities, as well as care-giving.My group is called Living Life…Abled & Disabled. But the name may change, seeing as I have been sprucing up the place a bit and doing some rearranging, getting things placed in a more organized fashion and whatnot.

We accept members as young as thirteen years old. And we do not limit the types of disabilities to be within the group. And there’s also a few “common sense” rules that I have in place, as to deter any major problems, spamming or other unforeseen fiascoes that could arise.

Here is the “description” from the group’s page itself…

“Some of us are deemed “disabled”, and some of us are those that care for someone, or love someone who is disabled.

Together, we join as one, to support and gain insight and help from one another.

We accept those that are 13-years-old and up to join us.

*Instead of “auto-adding” friends to the group, please send them a private message with the link available to them, and explain why you would like to see them join.

I personally hate the “new and improved” way of having the FB groups ran via the site managers. I want people to WILLINGLY join. Not feel forced.

Thanks for understanding.* ”

Underneath that, are the rules that are laid out for members and prospective members to adhere to. Like I stated earlier, they are all common sense, and are a means to keep peace, order and organization within the group’s walls.

I’ve been trying my best to get more members involved with the group. I’m not just talking about posting articles and whatnot. But ACTIVELY conversing with one another. At least on an every-other-day basis. And it’s true that I had not been quite active in the last couple of weeks. But that was due to out-of-the-home commitments where my kids and volunteering are concerned.

Plus, I put a quick end to obvious “spamming” that was happening. I don’t care WHAT it is being posted. If that’s all you post about, then to me (and most others), it is spam. And I refuse to have that in my SUPPORT group, where I want to see EVERYONE participate and support ONE ANOTHER. Not just take, and NEVER give back.

Support. That is what we at Living Life…Abled & Disabled are all about. Support, understanding, and a shoulder. But I want it to cut BOTH ways. And lately, it has NOT been that way, like it used to be in the beginning. And I’m hoping that soon, we will have that once again.

So, if you feel that the group is right for you, where we VALUE YOUR PRIVACY, seeing as it is a “closed” group where only members can see what is being posted, and you feel that you can contribute, not only for yourself, but to be a support to other members, then please, by all means, join us TODAY! All you have to do is “Ask To Join” and I will approve your request.

I hope you all have a wonderful weekend, and I hope to see you become a member of Living Life…Abled & Disabled soon.

"ADHD isn’t *anything* but a myth."

This dude’s nothing but a crock of crap! He is NOT a certified Medical Doctor (and actually ADMITS to such claim). And apparently, so is Depression. It’s a “moral dilemma”. The ADHD is an “imaginary” medical condition according to this dummy.

Ones like this asshat has NEVER had children most likely. Or never had kids with these disorders.

Medication Station… To Transfer Or Not. That Is The Question.

There went that idea. At least for another 2 weeks. I wanted to transfer B.’s meds to the store that my husband works at, seeing as Walgreen’s dropped my girls and their insurance plan.

Although his IS safe, at least for another year, I don’t like the idea of having everyone all over town with their meds. I called the store’s pharmacy (Kroger), and sure enough (like back when he WAS with them), they have NONE of the Vyvanse in his strength requirement (top dose of 70 mg).

So, this means filling again with Walgreen’s, calling Kroger in 2 weeks to ensure that they place the Vyvanse at that dose on order to come in, in time for us to fill it.

You would think though, being it’s one of the MOST WIDELY used drugs for ADHD, in all of the available strengths, that it would ALWAYS be on hand.

I have some thinking to do over the next couple of weeks over this and mull the decision over.

To me, it’s just plain common sense to keep in stock, the drugs that you as a Pharmacist knows are of popularity in prescribing. To do otherwise, could cause you to lose customers or (potential) ones. And what if the person was to have ran out before you can get more in? That COULD have deadly consequences.

Changes

On Tuesday, I had to work the Volunteer table at registration. After getting there, I registered the two kids that still will be attending (third is going to Middle School).

The School Nurse was seated in the Library and I was in the cafeteria. But this nurse was NOT the same nurse as from the previous school years. And knowing how busy she is, sometimes (due to health) she needs a sub nurse. Which is what I had thought of as I had seen the lady sitting at the desk.

Come to find out, that this woman IS the School Nurse, and is replacing the one that I have come to value as a friend, and whom my son was EXTREMELY attached to.

As I am sitting in my spot at Registration, another friend comes up, who’s child is going to Second grade, and is a Title 1 Reading Aide to say hi. We haven’t talked all summer. Well, then SHE to drops a bombshell. She is leaving at the end of the month to work in a Dentist’s office, in the same building as her twin sister.

Needless to say, telling B was no picnic. And he wasn’t all too happy. But also, where the School Nurse is concerned, I can ALREADY see it coming. That is, unless his Homeroom Teacher (and my oldest’s former teacher, and she also taught my husband in third grade, many moons ago) catches on to the tricks first and thwarts his idea.

B can be highly manipulative. And if you don’t know his subtle ways, his mannerisms and his voice changes, he can EASILY pull a fast one on you. And it usually happens when he doesn’t want to do something, trying to get out of classwork or a test or is in an environment he doesn’t care to be in at the moment.

The former school’s nurse knew ALL of his tricks. She knew when she needed to call me. She knew when she just needed to shoo him off back to class. She even knew when he HONESTLY did not get his Vyvanse that particular morning, and instead of calling, knowing B NEVER, EVER lies about it, just would give him his pill and then send him on his merry little way.

This year, I can see A LOT of phone calls from the nurse in my future. Then again, knowing the teacher, she will be able to catch him in his little cat/mouse game and thwart his ruse. Because she is just that covered and smothered in Awesome Sauce!.. I at least hope.

Lesson Learned

You would think that after this already happening LAST Monday, that we would have learned from the mistake..WRONG!

Seems that *I* have now, as of this morning. And thankfully, I was able to squash the problem BEFORE it became a REALLY BIG problem (like last Monday).

Just as we had last Sunday, we took the kids out to breakfast and of course, took Bryce’s Vyvanse (ADHD med) with us to give to him after he ate some food. It CAN be taken with or without food. But I like to have him eat before taking the pill.

And now, just like last weekend, it seems that Scott and I left it where it will do no good. Last week, it was in the van’s glove compartment. This week? In Scott’s jacket pocket.

OOPSIES!!!

But, unlike LAST Monday, this Monday (today) Bryce can get his pill from the School Nurse.

And now, I have thought to myself after realizing the faux pas for the second straight Monday in a row, that from NOW, ON… Bryce will have to just take his Vyvanse without food BEFORE we leave the house to take them anywhere, if it is in the morning hours.

Lesson learned. And hopefully problem avoided in the future.

Cutting Back

Once again, we are scaling back one of B.’s medications. One I’m in high hopes of phasing out altogether. To me, less is more, if at all possible. And I’m hoping in doing so, it helps curb the Tardive Dyskinesia (Tic Disorder that is usually medication-induced with Psychiatric Drug Therapy) as well.

So far, we’ve gone from 150 of Seroquel (mood controller and sleep aid), down to 100 mg dose. Then over the last several weeks, went down to a 50 mg dose. As of a couple of nights ago, we have now brought the amount down to 25 mg per night.

His other medications (Vyvanse and Intuniv) will remain the same, though. During the Summer Vacation time, we might try to next scale back the Vyvanse to see what happens.

Some people would say that it’s “about time” that I stop “doping” my kid up for MY gain and ease of parenting. But I say to them… You don’t live our life as a family, or as I as his parent, so YOU have NO room to judge or condemn me or parents like me with kids in the same situations.

True, most of these drugs that treat mental disorders can have some pretty harsh side effects. No doubt about it. But SOMETIMES, you must take the chance of the side effects as to “balance out” what is imbalanced in their minds and give these kids the BEST possible shot at a “normal” life as they can potentially have.

These medications have been known to SAVE the lives of these kids, and save the lives of those around them. Especially in times of being in severe volatile states of emotion and action. I personally in the past have had my son come at me with scissors, knives and hammers. He would tell me in explicit detail of how he was going to kill me.

Then, just like that, the rage was over and he honestly could not remember (most times) what he had said and done. What kind of life is that for a CHILD? This is why he has been on SOME KIND of medication or other since the age of six years old.

So while I have high hopes for completely getting my child off AT LEAST one (if not maybe even two) medications, I will always have it in the back of my mind that there is a very distinct possibility that again, he will HAVE TO go back on them. For his sake, my sake, and the family’s sake. And for all of our safety.