Welcome to the kick off of a NEW blog series, where MONTHLY, I will feature a Special Needs Parent. If you are interested in being considered as a featured SN parent in a future posting, please email me at firstname.lastname@example.org.
First up is Robin. In her own words, she will tell of herself, her family, and her life with having a disabled child.
basic info….stay at home mom, married 16 years in Feb., I enjoy reading, photograghy and word games.
have 2 sons Derek 11 and Jacob 13..
life as a special needs parent well, I don’t sleep much lol. it’s a struggle to balance my time between my sons since Jacob needs so much of my time. Jacob was dxed at 2 years, he was a good baby, well a great baby…only cried when he was hungry. Everyone was jealous but in the back of my mind I was worried. He was To good! He didn’t regress, he just reached milestones late. He didn’t babble, point, or “play” like other kids his age. He started PT at 8 months, Ot and speech at 18 months and early intervention at 2.
He is in the 8th grade and I’m going to start home schooling next because he will be going into high school and I feel like he will benefit more from one on one and I can pay more attention to the areas that of important to Jacob. He LOVES music, football, water, and food. lol which is a challenge because he is on the gf/cf diet.
He’s a good dancer. He has severe IBS and when he is in pain he becomes very aggressive. He doesn’t know his own strength. He gives the best hugs in the world! He has a lot of sensory issues and likes deep pressure and massage.
He likes to be petted on his arms some times which gets us strange looks in public. lol Doesn’t bother me, I’m outspoken if people are rude I let them know about it.
Autism is just part of our family….you learn to adjust your life accordingly. Jacob is non verbal so I am his voice….and I have a big mouth (hehe)!